Sometimes there is nothing to say. Sometimes there is too much to say. Sometimes there is a mix of too much and nothing to say...
On Sunday the 25th of October I took my last prednisolone. It has been 15 days since. This is the longest time I have been off steroids for at least 18 months.
I am not taking any other medication.
Last March my consultant told me I would have to have my colon removed.
I have maintained the hypnotherapy on an (almost) daily basis. I am still trying to get a handle on the NLP techniques, but each time I do it it feels a little better.
In the two weeks since the last pred I have had two stinking colds... or the same one with an 8 day lull in the middle. I don't think these two things are related. Neither do I think I've had swine flu. Naturally illness brings a little negativity into your world, a little anxiety, and (with my track record) a little fear. Yesterday I had a small toilet event. Not too urgent, not prolonged, no abdominal pain, but... loose. At the time I panicked, started to instantly get down, sat on loo for a while, head in hands... But, I went out to get my mind off it. I tried really hard with the NLP yesterday evening. I didn't go again until today. And it wasn't loose.
It's a day at a time. 15 and counting. Whatever is happening, whatever does happen I'm trying to stick to my guns. I still feel good (though plagued by snot) and, despite yesterdays blip, have remained mostly upbeat. I won't stop fighting this thing. I won't give up. I remember why I write here. Apart from sharing my experience to hopefully help someone else. It helps me.
Embrace the Suck
1 month ago