Tuesday, 12 August 2008
As well as all this mental and physical anquish (actually I've been pretty good mentally. I told the wife straight away how I was feeling, made the decision not to change dose pretty quickly and have stayed pretty cool. Its just the old quiet nagging voice in the back of my head...) there is a second reason. We are about to go on holiday. To Italy. By car. Now driving to Italy (over 3 days I hasten to add) probably has its challenges at the best of times. But driving to Italy with the perpetual fear of where the next toilet might be is too much for me to cope with. Especially with 2 kids in the back. So, for the sake of as enjoyable a holiday as possible I opted to stay on the steroids for a little bit longer. I'll have to change the dose when I get back because I've only got enough tablets for about another month anyway and my GP is never all that keen to give me any more without speaking to the hospital (who, incidentally, I STILL have not heard from, despite them telling me in May that they were 'pushing through' an appt to dicuss azathioprine). I just hope that the driving antics of our european neighbours and my 'roid-rage' do not prove to be too volatile a mix.
I intend to try and post whilst away if I find anywhere (internet cafe etc).
Monday, 4 August 2008
Sunday, 3 August 2008
The return of the Bristol Stool Chart. It has been 4 weeks since I had my last appointment at the hospital (in rheumatology). An ideal time to consider the current sate of affairs.
1. Prednisolone. I am taking 10mgs every day for the final time today From tomorrow, as discussed with the consultant, I am changing to an alternating 10 - 5 mg dose. This is good because I am sick to death of the shakes and the spots. This is not good because, as usual, up to this point everything has been hunky dory... but now...
2. Poop. 4 weeks ago things were somewhere around Type 1 or 2 (like nuts!). Then I started the probiotics, wherein they went to, ooooh lets call it a 4.5 (for artistic merit). This I took to be my bodies usual mentally stimulated resonse to change (I think my physiology is the perfect representation of a blue-rinse tory: doesn't like change and doesn't like foreigners). Things stabilised and I've had a good two and half weeks of 3/4's. Lovely. But, this also lulled me into a false sense of security - oh, how easily I'm swayed by olives, pickled onions, Thai curries etc. This final week has consequently been a mixture of 4 and 5's again. But then, that might be normal, I've forgotten what that is...
3. Yoghurt. Firstly I can't make up my mind how I want to spell this - with or without an 'H'? I started on the Activia and then moved on to the Muller Vitality as I was informed of their PRO and PREbiotic attributes. There is not much I can say about these. During the period of 3/4's I was taking them regularly, and after the initial bloatedness all seemed well. Then last week, as described above, things not so good. But crucially, I got a bit lazy, and when I ran out of yogs I couldn't be bothered to go and buy more, so I stopped having them every day... Well, I don't know if that would make much difference... Also the vanilla ones are infinately better than the strawberry ones.
4. When I've changed the steroid dose, I have to go and have another blood test. Joy.